Archive for September, 2006

The Next 50 Years

It’s pretty much over. Surgery was today, and went exceedingly well. Poor DTE was so nervous, but who wouldn’t be? Everyone was very nice, and as promised, the nurse came out of the OR every hour to update me on the progress. By the second hour she reported that the tumor was out, and was being biopsied. Another 90 minutes after that the BoyWonder Neurosurgeon came out to tell me it wasn’t cancer, the tumor was completely excised, and he didn’t need to fuse any of the vertebrae.

Right now he’s in the Neuro ICU just to deal with the post-op stuff, but he’ll most likely be transferred out to a regular floor tomorrow, and home by the weekend.

I am so happy, so relieved, so thankful, and so peaceful.

As I kissed him goodnight and goodbye tonight he said “The next 50 years are gonna be great, baby.” What a gift we’ve been given.

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That Bitch Karma

This is all I can say:

It started a long time ago. I immediately admitted my role in it, but wanted revenge. I got revenge, but it turned into something else. I have not been honest. I have not been honest, and so even now when accusations fly, he will not, cannot hear the truth. I don’t blame him – and yet what he believes is not the truth. This is my own doing. And now we are back where we started, and lo and behold, I feel the same pain. This time I don’t want revenge, but I don’t know how to deal with this. I cannot even discuss it with him because it will turn into a treatise on my behavior and I am done with that. I will listen to the insults no more…but how am I going to let this go? When do we end this cycle?

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Life on a plate

The news was good, given what it could have been. It’s a benign tumor, inside of the spinal column but not in the cord itself. It’s pretty big, and will be removed surgically as soon as possible. A fairly long, delicate surgery, but the tumor isn’t attached to any of the nerves that control motor function. In other words, the surgery will not present a risk of paralysis of limbs. Not removing it, however, could pose that risk. I’m all for the surgery!

The wait (as you heard me whine about over and over) seemed to last forever. We finally left for the doctor’s appointment, only to wait in the waiting room for at least 30 minutes. Then we went into the room, met with the nurse, talked with her, then waited at least another 20 minutes. We met with the physician’s assistant, then waited AGAIN, this time for the doctor. The doctor finally came in, I believe he is Doogie Houwser’s younger brother. He is apparently a very busy, important man, because during his 15 minutes with us he left the room twice to take other phone calls.

But – he gave all good news. Sure, surgery won’t be fun, but considering the alternative… we’ll take it. We left there, I called my mom and told her we were going out for a drink. D was still in quite a bit of pain (he didn’t take anything before the appt. so they could truly see how bad it is for him) but I needed some decompression time. We went to a local bar, each had a beer and I smoked a much needed cigarette. I could feel the tension oozing out of me; I was actually shaking with relief. I wanted to cry I was so fucking relieved. I feel like our whole lives are before us, the future is ours, endless with possibilities. I feel as though we are starting all over again. How the hell did I get so lucky?

D wants to go to “church” on Sunday, said he feels like it might be a good thing to do at this point in our lives. He has never, ever talked about it, requested it, nothing. He is the most unspiritual man I’ve ever met. But yeah – Sunday we’ll go to the Fountain Street church.

I’ll say that second prayer now: thank you, thank you, thank you. And the other prayer I recently learned: every breath I release, full of my hopes, my needs, my thanks, carried on the air to the ear of my god. I am blessed.

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Last night before

Trying to get through the minutes. Morning was bad, several friends said to me “I don’t know what to say”, and that was actually the perfect thing to say. There IS nothing to say. Made it through work ok. A new pair of shoes arrived in the mail today (another EBay purchase) and D called to tell me. He thinks it’s a good omen.

He and I are both superstisious. Here’s one of my fears that I will not tell him: I’m afraid they’ll tell us tomorrow that surgery will need to be done. And they’ll schedule surgery for the first week of October. The first week of October is when my grandmother died. It’s when D’s dad died. It’s when Marc-y’s mom died. It is a bad, bad time of year.

I sat through Lucy’s 2nd grade open house like a zombie tonight, my mind not at all on the teacher speaking. Drove GMan to karate. Came home, ate a bowl of cereal for dinner and am now swillling wine. (I know no one cares what I had for lunch, but dinner, well, dinner is facinating, isn’t it?) Classy dinner, all the way. D is acting like everything is fine; he’s teaching Lucy to sew right now. They just made a pillow.

I’m screaming inside. She’ll never learn anything if he isn’t here. They will never eat anything but cereal for supper if he isn’t here. I feel raw. I feel exposed. Imagine what he must be feeling.

I promised I wouldn’t watch Grey’s Anatomy tonight. What the hell will I do with my time?

Edited to add: getting drunk on cheap wine maybe not my best choice. Oops.

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The waiting is the hardest part

Waiting. Waiting. Water dripping from the faucet. Drip drip dripdripdrip. Still waiting. Two more nights, then half a day. Sit on the couch, that takes 5 minutes up. Go for a walk, another 25 down. I try not to dwell on it, and today did pretty good at that. And then I feel guilty, like maybe I shouldn’t be so careless with my thoughts, maybe I should be thinking about it, because what IF? What if it is bad, shouldn’t I be thinking all those things right now? I know, I know – I should just enjoy what I can right now. But I still feel guilt if I feel anything other than stress right now.

At the hospital, the MRI tech gave us a sample of cd’s for D to choose from (to listen to while in the tube.) One of them was by some country singer (Garth Brooks? Kenny Chesney? One of those types) and the fucking cd was called “Live like you are dying.” Uhhh, NOT a good choice while you are stuck in a tube, holding still for 40 minutes as they inject dye into your body to find out if you have cancer. Stupid cd. Stupid tumor. Stupid, stupid fucking tumor.

Thursday we’ll know.

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First Date, Deja Vu

The other morning we talked in the dark, with our coffee. D sat on the chair, because being on the bed causes too much pain. He talked to me about who to call, and what to do, for and with all of his tools/machines. Today we took a ride in my mom’s minivan, and he drove me to his storage unit where the big machines and tools are. He showed me where the building is, where the key is, how to disarm the security system, etc. I was bored, looking around at all that stuff. He was giddy, talking about each machine lovingly, telling me what it is capable of, and how much of a bargain he got when he bought it.

It reminded me of our first date. (I use the word date loosely.) I asked him to take me for a ride in his VW van. We didn’t have a destination in mind, so he took me to a place where he kept all of his tools. He showed them all to me; I particularly remember him showing me some fancy screwdriver. I was bored, but facinated by this man who got so excited at a bunch of tools and machines. I always thought tools were something kept in a box, pulled out only when something was broken and Dad would be yelling “Jesuschristsonofabitch!” I didn’t realize one might use tools and machines to make incredible, beautiful art.

After leaving the shop, he took me for a walk at Cherokee Marsh. This charmed the crap out of me, as I am very nostalgic about Cherokee Marsh. I went there twice a year, every year, on school trips as a kid and I lived not far from there in the subdivison called “Cherokee”. Many fond memories, a huge piece of me – and here he was, already familiar with it.

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My foundation

I like to believe I am confident, intelligent, in control most of the time. I hold certain beliefs that are so fundamental to my being that they are more like feelings, or even more like part of my structure, my foundation. I don’t even realize I have these beliefs, but when something threatens them, something happens to perhaps change those truths, those beliefs – well, I feel like I’m stepping into my house, everything is the same, the walls, the furniture, the smells, and yet the floors are gone. So the house can’t be the house anymore. It’s still my home, but it’s entirely different.

I am so scared. I am so scared because he is scared. He is being so nice to me. He is so concerned for me right now. He cleans the house, he says “Whatever you want to do is fine with me” when I ask him if he wants to go somewhere. And he is scared. He said last night that he had always been afraid that maybe he had a ruptured disk or some other ailment that was going to require surgery. Looking back, he wishes that had been the diagnosis.

My mother called me last night to tell me where she and my dad were going to be. “Just wanted you to know we’ll be at the E.H. Golf course if you need us for anything.” Need them? I go weeks without knowing where they are, and now they feel the need to stay in hourly contact it seems.

My mother bought two burial plots a couple of weeks ago, and before she purchased them she kept bugging my sister and me to go look at them with her. We both told her she was nuts, we didn’t too, and Beany even felt that in light of her recent trauma that it would be bad luck! So yesterday my mother said again that she wanted me to go look at them with her. I told her she was silly, but fine, I would go with her so she could just buy the damn things. Then she said to me “I already bought two. But I want to buy two more.” I said “What for, so you can have extra room in your coffin?” and then I got it. I got it. And then she said “we can even get an extra big headstone on it for our name and for DTE’s”. fuck fuck fuck.

My dad drafted a letter for me to make a withdrawal from a retirement account he had set up for all three of us kids. He left the dollar amount blank and said “Take whatever you want”. And then he called his former colleagues and got information for us about the neurosurgeon D has the appointment with, and also got us the name of another one so we can go for a second opinion if we want.

I think about how empty our lives would be. I would have to be the driver all the time. I would have to make the oatmeal for Lucy. Lucy would be mad forever. He is her best friend. And GMan, there are things he only feels ok talking to his dad about. He needs that man in his life, the one man who doesn’t have bogus “man” expectations, the one man who encourages G’s creative side, and his love of animals (stuffed or otherwise)…

I feel like we’re having sex less often. We probably are, because of the pain medication he’s taking. He can’t even lay on his side like he used to. We always, always sleep curled up next to each other. I find it hard to fall asleep without his warm body next to mine, the full length of him in front of me. And now he sleeps almost sitting up, and only for a few hours at a stretch. How will I sleep without him? That, to me, is one of the biggest ways I would notice his absence. It would be huge.

This is too real. Every time we hold hands I’m thinking “god, don’t let it be, don’t let it be, I want to keep on holding hands.” My kids need hime. They NEED him. I can’t do for them what he does. If he is gone, I don’t know how they will go on. And I don’t know how I’ll function, either. Like the floor, I take him for granted far too often. But I know I need him. My belief, my truth, is that he is in my life, daily, alive.

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Sometimes something small can scare the shit out of you. Something you’ve been living with for years, and one day you look at it, and it’s a big monster instead of an annoying fly. Or is it? Maybe it’s just an illusion, maybe you are projecting your fears. Maybe you think you deserve that big monster in your life. Except if you deserve it, than it should be attacking you, and not someone that you love.

Does god think you’re a big asshole if the only time you pray is when things are scary and bad? Is it ok to pray even if you don’t really believe? Why does it seem like you only believe when you need something? How many times are you going to promise “I will start going to church every Sunday if you let him live” before god gets really pissed? Or does god just sit there, taking all the fear and anger, and hold it for you?

I think, after doing some ill-advised and poorly executed internet research, that it might not be quite as bad as I thought this afternoon. But still. fuck.

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Sometimes something small can scare the shit out of you. Something you’ve been living with for years, and one day you look at it, and it’s a big monster instead of an annoying fly. Or is it? Maybe it’s just an illusion, maybe you are projecting your fears. Maybe you think you deserve that big monster in your life. Except if you deserve it, than it should be attacking you, and not someone that you love.

Does god think you’re a big asshole if the only time you pray is when things are scary and bad? Is it ok to pray even if you don’t really believe? Why does it seem like you only believe when you need something? How many times are you going to promise “I will start going to church every Sunday if you let him live” before god gets really pissed? Or does god just sit there, taking all the fear and anger, and hold it for you?

I think, after doing some ill-advised and poorly executed internet research, that it might not be quite as bad as I thought this afternoon. But still. fuck.

Leave a Comment

Sometimes something small can scare the shit out of you. Something you’ve been living with for years, and one day you look at it, and it’s a big monster instead of an annoying fly. Or is it? Maybe it’s just an illusion, maybe you are projecting your fears. Maybe you think you deserve that big monster in your life. Except if you deserve it, than it should be attacking you, and not someone that you love.

Does god think you’re a big asshole if the only time you pray is when things are scary and bad? Is it ok to pray even if you don’t really believe? Why does it seem like you only believe when you need something? How many times are you going to promise “I will start going to church every Sunday if you let him live” before god gets really pissed? Or does god just sit there, taking all the fear and anger, and hold it for you?

I think, after doing some ill-advised and poorly executed internet research, that it might not be quite as bad as I thought this afternoon. But still. fuck.

Leave a Comment

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